To answer your question Lacey.. uh, no.
This is also not our first run in with the g tube nasties, so is the life of raising a kid who is somewhat immuno - compromised.
Last time it was staph, and we spent 10 days inpatient on IV antibiotics.
At least this go around we've fared a little better. A serious, hard core antibiotic at home, and an immediate trip to the ER if like last time, the line of infection on the skin makes a bee line for his heart. Last time it was already headed there and it bought us an immediate admission, so, all in all still better than last time.. so far.
However...
You're all lucky my camera has dead batteries cuz there's some gunk under my kids elmo shirt that's just jonesing for it's 15 minutes of fame.
It is, in the words of a former intensive care nurse ...... icky.
Now after a trip to Walgreens and the purchase of some sterile saline burn pads for the oh so yucky gaulding around the lil man's mickey,
he... is.... out.
Thanks for the love.
- Stephanie
- Geneva, Florida, United States
- I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that collapsed his lungs, and he is currently battling failure to thrive brought on by the toll it's all taken on his little body, but he's strong and together we are learning to navigate the craziness and to revel in the beauty that is this life. This is Vincentio's story so far, far from over. It's not just a Down Syndrome thing. It's a Congenital Heart Disease thing, a Congenital Diaphragmatic Hernia thing, a myeloproliferative blood disorder thing, a G Tube thing, a "failure to thrive" but I'm Still A Survivor thing, and more than anything... It's about how one little boy can bring an aching family together and make them whole again.
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