Saturday, July 4, 2009

Moving in the right direction

The doc came in a few minutes ago and reviewed his status, they seemed pleased that he is now retaining the formula in his intestine. Since they lowered the rate and added the Eryped we haven't seen any more leaking from his stoma. One battle won.

Now the conscern is the bile and stomach acid that continues to leak.
Apparently with the J tube in the small intestine it stimulates the bile production and that's what is causing the drastic increase. They desparately want his skin to heal so the objective now is to get this drainage lessened as much as possible. Right now the G port is still attached to a drain and we're having to empty it often in addition to what's leaking out around the button.

That means another med. Reglan will be added today to the Eryped to help with the gastric emptying so that the bile doesn't just sit there in his stomach and leak.
They are also switching his Zantac to Prevacid which is a stronger antacid, so when there is leakage it's less damaging.

The issue with the GJ button being too long is something we're going to have to deal with, apparently they don't make a shorter one. Doesn't make a whole lot of sense to me but that's the deal. Nothing we can do about that one.

Guess we're just going to continue to have to be creative with the gauze. As long as we can get this drainage under control and continue to keep him nourished, I can handle everything else.

Down the road the hope is to heal his skin and possibly save this site and put the regular Gtube back in or maybe resite it if neccessary.

For now he's on 24hr Jtube feeds. He's perking up finally and getting closer to being his old self again. We're handling the pain of dressing changes with premeds to keep him comfortable and so far it seems to be helping.
That's another huge load off my mind, I hate to see him in pain.

He'll get his Eryped and Reglan 4 times a day, and once daily Prevacid added to his regular meds and we'll pray for good results. We may even get to talk about going home in a couple of days.. woohoo.

Happy 4th everyone and keep watching.. cute lil man pics coming later today!!

1 comment:

  1. Ugh, hopefully you get out of there soon. I remember watching fireworks from the hospital balcony last year because jax was in the hospital, it stinks.