Grrr.. I'm having trouble getting V back into therapy. He's been out of his regular PT/OT and speech therapy for months due to all the feeding tube problems he was having. He was so sick and weak from malnutrition that he could barely stand on his own for the longest time before this last surgery.
That's why I finally pressed for the surgical revision of the site. I think a year and a half of trying to stop the profuse leakage from his original site was enough (not to mention the repeated infections and intense pain from skin breakdown), and fortunately so did his GI doctor. But by the time they really got down to business he was so depleted it was rediculous.
There was no way he could have participated in any type of active therapy.
In a way it happened at the perfect time (if there is such a thing), because financially we were having trouble coming up with the gas money to get there and NO ONE wants to come out here to our house. Can't say I really blame them. We're not in an easily accessible area and there's no room in here to allow for much anyway. Going to them is really the best option for us.
Now that V is over his last (I hope) g tube surgery and is healing well I want to get him back into therapy but nobody will return my calls or emails. His therapists have always been very accomodating and wonderful to us, it's just that I can't seem to get a response from ANYONE.
Ugh. Just venting today, and hoping somebody returns my emails soon. My kiddo needs services and when he couldn't participate they were all over us. Now that he's ready.. where is everyone???