So Dr.B (GI) and I spoke about a week ago. He was interested in my opinion as to whether I felt that V's stoma would tighten up around the GJ tube. Ultimately he wants to get him back on gastric feeds like before.
I told him that V is definitely putting on weight which is great. That was a major struggle up till now. His skin is also looking better than it has in months.
However... that naughty stoma just WILL NOT seem to close.
In my opinion, I think that he is going to need a surgical revision. This stoma is not going to close. So if it's going to have to happen, we might as well get it done while he's healthy and infection free. He agreed and told me to call Dr.P (surgeon) to get him scheduled.
We have a consult scheduled for August 24th to get the surgery scheduled.
Then this morning... "IT" happened.
For once the kids slept in, I was in bliss. My five year old, Ryan woke me up around 9:45am because he wanted breakfast.
I got up to fix it and when I walked by V's bed I saw it. Bile, soaked all into his shirt.
At first I cursed the old standby, the med port. It must have opened when he rolled over.
But the med port was closed.
Wait a minute.. this tubing is way longer than it should be... Aaaahhhh!
The whole stinking button, J tube and all was pulled out and curled inside his onesie!
... OH ... MY ...GOD!
So we made it to the ER at about 12:30pm.
He was in the OR by 2:45pm.
We were on our way home by 5:00pm.
Not too bad, we made it home in time for Sunday dinner. If nothing else good came out of today, surgery was able to get a hold of a shorter GJ this time so he has one in that actually fits now.
We were so close. So close to getting this resolved without any real drama.
That would have been a first. Oh well, what would our lives be like with no drama?