Frustrated and standing still

Grrr.. I'm having trouble getting V back into therapy. He's been out of his regular PT/OT and speech therapy for months due to all the feeding tube problems he was having. He was so sick and weak from malnutrition that he could barely stand on his own for the longest time before this last surgery.

That's why I finally pressed for the surgical revision of the site. I think a year and a half of trying to stop the profuse leakage from his original site was enough (not to mention the repeated infections and intense pain from skin breakdown), and fortunately so did his GI doctor. But by the time they really got down to business he was so depleted it was rediculous.

There was no way he could have participated in any type of active therapy.

In a way it happened at the perfect time (if there is such a thing), because financially we were having trouble coming up with the gas money to get there and NO ONE wants to come out here to our house. Can't say I really blame them. We're not in an easily accessible area and there's no room in here to allow for much anyway. Going to them is really the best option for us.

Now that V is over his last (I hope) g tube surgery and is healing well I want to get him back into therapy but nobody will return my calls or emails. His therapists have always been very accomodating and wonderful to us, it's just that I can't seem to get a response from ANYONE.

Ugh. Just venting today, and hoping somebody returns my emails soon. My kiddo needs services and when he couldn't participate they were all over us. Now that he's ready.. where is everyone???

Absenteeism..

Sorry for the lack of updates lately. It's not that there's any less happening around here, it's just been super exhausting.

Mainly V has been stable lately. He recovered well from the flu, thank goodness. I still have yet to get any photographic lovelies of his new improved belly but I haven't forgotten.

This past week Ryan has been our main area of worry. Ryan is five, almost six (Nov.2)..

(shameless birthday plug).

He got the flu also this past week but usually he's an extremely healthy kid.

For a few weeks before the flu though, we noticed a worsening nighttime cough.

Not a dry, asthma like cough, but a sort of junky sounding cough.

During the days he was pretty much his normal self so I figured it would pass.

Then the flu came.. and went, and the cough is still there. A little worse actually.

Now it's increasing a bit in the daytime and he's been much more sleepy.

.. and grumpy.

Now, keep in mind that Ryan is the type you have to promise gifts to, or threaten bodily harm to get him into bed at night. And the last few weeks he's ready for bed by 7pm.

Now the last week he's been falling asleep on the way home from school and sleeping right through dinner.

Decidedly NOT normal.

We're going to see how he is this weekend and we may be making another visit to our friendly neighborhood pediatrician.

Mucinex, Claritin and breathing treatments are helping the cough some, but not enough (Ryan has never needed breathing treatments). And this sleepy thing has thrown me for a loop.

I've already done the nervous Mommy check over. No skin rashes or lumps and bumps that I can find, and when he is up and awake he seems alright for the most part. Except for the overly grumpiness and cough. No fevers since the flu made it's leave.

So, send healthy vibes if ya got em', and hopefully we'll be back to our crazy selves soon.